Planning Ahead for Health Care Decisions in Assisted Living

Older adult and family member reviewing advance care documents at a kitchen table with a physician nearby.

Assisted living often prompts families to discuss more than daily support, medications, and meals. It is also a practical time to clarify who should make health care decisions, what treatments a person would or would not want, and how those wishes should be communicated if illness or cognitive decline affects decision-making.

For residents and families in New Holland, PA, advance care planning can reduce uncertainty during a hospital transfer, serious illness, or emergency. It does not require predicting every medical situation. The goal is to give trusted people enough guidance to act according to the resident’s values.

What is advance care planning?

Advance care planning is the process of discussing future health care preferences and documenting important decisions before a person is unable to speak or decide for themselves. In Pennsylvania, an advance health care directive may include a health care power of attorney, a living will, or both. ([pa.gov](https://www.pa.gov/agencies/aging/pa-carekit/caregiving-resources/end-of-life-care?utm_source=openai))

The process usually includes:

  • Thinking about goals, values, and acceptable levels of treatment
  • Choosing a health care agent
  • Writing instructions for serious illness or end-of-life care
  • Sharing the documents with family members, clinicians, and the assisted living residence
  • Reviewing the plan as health, relationships, or preferences change

Advance care planning is not limited to people who are seriously ill. A sudden stroke, infection, fall, or accident can affect decision-making at any age.

What is the difference between a living will and a health care power of attorney?

A living will gives instructions about certain medical treatments if a person cannot make or communicate decisions and has an end-stage medical condition or is permanently unconscious. A health care power of attorney names another person to make health care decisions when the resident cannot make them independently. These documents may be completed separately or combined. ([legis.state.pa.us](https://www.legis.state.pa.us/WU01/LI/LI/CT/HTM/20/00.054..HTM?utm_source=openai))

The two documents serve different purposes:

  • Living will: Explains preferences about life-sustaining treatment and other end-of-life decisions.
  • Health care power of attorney: Names a health care agent who can interpret the resident’s wishes as circumstances change.
  • Combined directive: Provides both written instructions and a designated decision-maker.

A living will cannot answer every possible medical question. A health care agent may be needed when a situation does not fit neatly into the document.

Who should be chosen as a health care agent?

The right health care agent is usually someone who understands the resident’s values and can remain calm during difficult conversations. The person does not have to live nearby, although distance may affect how quickly they can participate in decisions.

A potential agent should be willing to:

  • Speak with doctors, nurses, and hospital staff
  • Consider the resident’s wishes rather than personal preferences
  • Ask questions about likely benefits, burdens, and alternatives
  • Make decisions during stressful or time-sensitive situations
  • Coordinate with family members without assuming that everyone will agree

Pennsylvania law allows a health care power of attorney to name more than one agent or successor agents, subject to the document’s instructions. A health care agent generally cannot be the attending physician or another provider involved in the resident’s care unless the person is related by blood, marriage, or adoption. ([legis.state.pa.us](https://www.legis.state.pa.us/wu01/li/li/ct/htm/20/20.htm?utm_source=openai))

Naming a primary agent and a successor can prevent confusion if the first person is unavailable, has died, or can no longer serve.

What should residents discuss before signing documents?

Legal forms are more useful when they are supported by personal conversations. A resident might discuss:

  • Whether the main goal is extending life, maintaining independence, relieving discomfort, or balancing several goals
  • Feelings about hospitalization, intensive care, ventilators, feeding tubes, and resuscitation
  • How much physical or cognitive impairment would affect treatment preferences
  • Religious, cultural, or personal beliefs that should guide decisions
  • Who should be included in conversations
  • Preferred involvement of family members
  • What quality of life means to the resident
  • Assisted Living photo from Adobe Stock

These discussions do not need to be dramatic or completed in one meeting. A conversation may begin with a question such as, “If you became too sick to tell doctors what you wanted, what would you want them to understand about your priorities?”
Preferences can change. Moving into assisted living does not make a person’s previous choices permanent, and a diagnosis does not automatically require a new plan.

How does advance care planning work with assisted living?

Assisted living staff can provide daily support and communicate with health care providers, but staff members generally do not replace a resident’s legally recognized health care agent. The residence should know where the resident’s documents are kept and who is authorized to make decisions.
At move-in or during a care review, families may want to confirm:

  • Whether a copy of the directive is in the resident’s record
  • The name and current contact information for the health care agent
  • Whether the agent has a copy of the document
  • Which physician or medical practice has the most recent copy
  • How emergency transfers will be handled
  • Whether the resident has a current medication list and medical history
  • Whether any do-not-resuscitate order or other medical order is in place

A document stored only in a desk drawer may not be available during an overnight emergency. Copies should be accessible to the people most likely to need them, while protecting the resident’s privacy.
Local households may also need to consider practical issues such as winter weather, power interruptions, limited transportation, or family members living in different parts of Pennsylvania. A clear backup contact and an updated emergency file can be especially helpful when travel is difficult.

Is a health care power of attorney the same as a financial power of attorney?

No. A financial power of attorney concerns money, property, bills, and other financial matters. A health care power of attorney concerns medical and personal care decisions.
A financial document does not automatically authorize someone to make health care decisions. Families should review each document separately and avoid assuming that the person managing finances is also the person authorized to direct medical care.
Advance care planning also differs from estate planning. A will generally addresses property after death, while an advance health care directive addresses medical decisions during life when the resident cannot decide or communicate.

What is a DNR, and how does it relate to advance planning?

A do-not-resuscitate order, or DNR, is a medical order concerning cardiopulmonary resuscitation if a person’s heart stops or breathing stops. It is not the same as a living will or health care power of attorney.
A living will expresses treatment preferences, and a health care power of attorney identifies a decision-maker. A DNR is a clinician-issued order that addresses resuscitation specifically. Pennsylvania also recognizes out-of-hospital nonresuscitation orders under state law and Department of Health guidance. ([pa.gov](https://www.pa.gov/agencies/health/programs/school-health/dnr?utm_source=openai))
A resident who is considering a DNR should discuss the decision with the attending physician so the medical order accurately reflects the resident’s current condition and wishes.

When should documents be reviewed?

Review an advance care plan at least after a major change in health, a new diagnosis, a move, a divorce or death in the family, a change in the chosen agent, or a significant change in personal priorities.
Pennsylvania law permits advance directives in forms that meet the required legal content; the state does not require one single mandatory form. A resident who creates or changes a directive may wish to discuss the wording with a physician and, when legal interpretation is needed, an attorney. ([legis.state.pa.us](https://www.legis.state.pa.us/WU01/LI/LI/CT/HTM/20/00.054..HTM?utm_source=openai))

The most useful plan is current, understandable, and known to the people who may need to rely on it. It should reflect the resident’s voice—not merely a family member’s assumptions about what the resident would want.

The Pennsylvania Assisted Living Association

In Partnership With

The Pennsylvania Assisted Living Association

The Pennsylvania Assisted Living Association (PALA) is the only statewide organization dedicated exclusively to supporting assisted living residences and personal care homes across Pennsylvania, focusing strongly on the individuals and families who rely on these services. PALA advocates for safe, affordable, high-quality, person-centered care that promotes dignity, independence, and informed choice, while working with state agencies and policymakers to strengthen standards, protect resident rights, and enhance the quality of life throughout the Commonwealth.